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Title Biobanks : governance in comparative perspective / [edited by] Herbert Gottweis & Alan Petersen.
Imprint Abingdon, Oxon ; New York, NY : Routledge, 2008.

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 Internet  Electronic Book    AVAILABLE
Description 1 online resource (xii, 234 pages)
Bibliog. Includes bibliographical references and index.
Note Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK). WlAbNL
Available only to authorized UTEP users.
Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force. WlAbNL
Print version record.
Subject Human genetics -- Databases -- Moral and ethical aspects -- Cross-cultural studies.
Biobanks -- Government policy -- Cross-cultural studies.
Biobanks -- Political aspects -- Cross-cultural studies.
Databases, Genetic -- legislation & jurisprudence.
Confidentiality -- legislation & jurisprudence.
Databases, Genetic -- ethics.
Public Policy.
Genre Cross-cultural studies.
Contents Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen -- Biobanks in action : new strategies in the governance of life / Herbert Gottweis -- The rise and fall of a biobank : the case of Iceland / Gísli Pálsson -- Estonia : ups and downs of a biobank project / Rain Eensaar -- Patient organizations as the (un)usual suspects : the biobanking activities of the Association française contre les myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer -- "This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider -- Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher -- Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis -- UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen -- Biobanks and the biopolitics of inclusion and representation / Richard Tutton -- The informed consenters : governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken -- Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen -- Governing through biobanks : research populations in Israel / Barbara Prainsack.
Other Author Gottweis, Herbert, 1958-
Petersen, Alan R., 1953-
Other Title Print version: Biobanks. Abingdon, Oxon ; New York, NY : Routledge, 2008 9780415427371 0415427371